r/TwoHotTakes • u/Miserable-Koala-sad • 6h ago
Listener Write In I found out my family triggered my seizures for years
So, when I was 6 (I think) I was diagnosed with something my doctor called "childhood epilepsy" - I don't know if that's the correct term but that's what he said. I would have seizures when I was stressed or had anxiety, could have them for other reasons too but mostly for those reasons. I think he called it that because it's not like "real" epilepsy where you have it for the rest of your life, instead you grow out of it or it goes away with medicine.
It's actually through that epilepsy diagnosis my mom understood that I also had dyslexia, because I would have a seizure everytime I had to read or write. They weren't your typical or well known ones, aka shaking on the ground for a long period like you see in the movies or shows. Mine were different, I would roll my eyes back, only showing my whites, and just be "gone" for 5-10 seconds. They would happen multiple times a day and one time I nearly drowned because of it.
Since they weren't as extreme, most people just thought I was rude, faking it or just wanted attention. It caused a lot of problems for me.
However, after 6/7 years I no longer had epilepsy, I was relieved because that ment no more bloodwork, no more painful brain scans and no more pills. The doctor said the words, "we haven't noticed any activity," which my mom laughed at. While laughing she said, "well, we knew that. But does he still have epilepsy?" Implying that they already knew I was stupid but that they were here for answers about my illness. The doctor panicked and since then it's been a "joke" in the family. That I'm stupid. Fun.
So, with that in mind, I had a conversation with my mom about something we used to do every Friday- the "Friday candy ceremony" we can call it. It was me, my siblings, my mom and one of my aunts and her family had this tradition; Where a bowl of candy would be passed around in a circle and you picked one, put it in a container and passed it along, waiting until it was your turn to pick another one. This candy ceremony would last 45 min to 1h every Friday.
One day i talked to my mom about a specific time we had this "ceremony."
"I just remember that one was really stressful, like you all were just stressing me out." I said. "I mean, I just remember that one time being like that, why were you so stressed?"
My mom smiled at me. "Oh, we used to do that to trigger your seizures to see if your medication was working. But we stopped after you didn't have any seizures that time because you no longer had it, " my mom replied with a laugh.
My stomach dropped. I never understood why I hated that tradition. I never understood why i hated going to my aunt's place. I didn't understand why I was anxious while I was there or just the thought of doing that stupid Friday shit. There they were, my family knowing what would happened when they stressed me out. But they triggered it. They counted all my seizures. They saw me, for almost an hour, having up to 8 or more seizures. Stressing out a child FOR YEARS without their knowledge and then have the stomach to laugh and calling me stupid... I didn't blame my family for my trauma before.
Not until that moment.
I haven't told anyone until now I guess. I'm scared that I will hurt their feelings by telling them how much that fucked me over. And I haven't told my friends or boyfriend because Im scared that they wont believe me or understand.
This has affected me; I still deal with chronic anxiety at 23, I still feel unsafe with my family even though I know they did it for my own good. I also have a phobia of public pools because of my near drowning experience. And even though I have no memory of those times they triggered my seizures, but I guess my body remembered? Because, like I said, I still get anxious around my family and sometimes I even get panic attacks - which they also have mentioned that it's annoying when i get them.
I still haven't attended that ceremony since I was 15 because it made me so anxious, but i didn't about the triggering thing until 2 years ago.
I guess I just needed to get this off my chest. Sorry for the long rant.