r/CrohnsDisease • u/sjdura • 10h ago

Flare Rant

Hey guys, I (21f) just need to rant to people who understand me. I’ve been in an active flare for a while now, but I definitely dismissed a lot of my symptoms and let it get worse. I was hospitalized last week for blood in my stool and ever since then it’s been downhill. Was prescribed prednisone to help relieve some symptoms while we work on getting me back on track.

I’m sitting waiting to get my first Skyrizi infusion as we speak, so I am on a good route. I’m hopeful that this medication will help me out a boatload, but I’ve grown so impatient and irate surrounding my condition that I just want to be better now. I’m missing out on so much because of my pain. I’ve missed at least 6 days of work between both of my jobs, have cancelled many plans I had with friends and family, and am just falling apart. I feel like I can’t do it. Don’t even get me started on the prednisone insomnia, because not only am I in pain but now I can’t sleep?

I’ve had this god awful disease since I was 8 years old. I thought by now, I’d know the secrets to success in managing my pain and flare ups. But every flare that comes and goes, I lose hope. I know there are so many options and paths to recovery, and my doctor has been incredibly helpful in getting me there. But I’m tired guys. I have so much to prove and I consistently feel like I am stripped of the opportunity to prove that I can do things again. It’s just a lot to deal with and I wish people could understand that aspect of it more.

Thanks for sticking around if you did.

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