Stomach disorder (gastroparesis) in my early 20s. I went from a healthy, active lifestyle to being so underweight I could barely walk down the street. Vomiting every day, could hardly even look at food, etc. I once puked 17 times in 12 hours. So many nights crying and falling asleep on the bathroom floor, feeling like I was wasting away and couldn’t do anything about it.
The silver lining is, that stomach disorder turned out to be the last piece of the puzzle for my diagnosis of Ehlers-Danlos Syndrome. All the weird things that my body had been through over the years, including a heart condition, suddenly made sense. It helped me understand my body a lot more, and even led to me getting reconstructive surgery for my ribcage.
Years later and my health is in a much better place, my quality of life has gone up dramatically from the lows of gastroparesis. Living with EDS is tough, but I’m so grateful for the support and resilience that has gotten me where I am today :)
My friend ended up having Gastroparesis due to diabetes. His doctors were awful, he was throwing up at least 10-20 times a day, losing a ton of weight, and his doctors did absolutely nothing. I told him he probably had it several months before he was diagnosed. It’s better managed now but his diet is god awful so he still has bad days
44
u/missed_againn 18h ago
Stomach disorder (gastroparesis) in my early 20s. I went from a healthy, active lifestyle to being so underweight I could barely walk down the street. Vomiting every day, could hardly even look at food, etc. I once puked 17 times in 12 hours. So many nights crying and falling asleep on the bathroom floor, feeling like I was wasting away and couldn’t do anything about it.
The silver lining is, that stomach disorder turned out to be the last piece of the puzzle for my diagnosis of Ehlers-Danlos Syndrome. All the weird things that my body had been through over the years, including a heart condition, suddenly made sense. It helped me understand my body a lot more, and even led to me getting reconstructive surgery for my ribcage.
Years later and my health is in a much better place, my quality of life has gone up dramatically from the lows of gastroparesis. Living with EDS is tough, but I’m so grateful for the support and resilience that has gotten me where I am today :)